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New Study to Address Persistent Inequalities in Dementia Services for Black Communities in the UK

20 September 2024

UCL researchers are recruiting people from Black African, Black Caribbean and Black British communities affected by dementia to develop an inclusive service model with Alzheimer's Society

elderly couple walking

Black families affected by dementia are underrepresented in dementia services, and often receive inadequate support, facing significant inequalities in dementia care.

A new study, led by University College London (UCL) and funded by Alzheimer’s Society, aims to address these inequalities and improve dementia services for people of Black ethnicity and their family carers across the UK.

Barriers to accessing dementia services include the absence of culturally sensitive or appropriate services, negative experiences with health and social services, and stigma associated with dementia and language barriers. The study will develop an inclusive service model to overcome these barriers, in collaboration with people from Black communities across the UK who are affected by dementia.

Dr Moïse Roche, Lead Investigator at 911, commented: “Our goal is to create an inclusive service model to address gaps in dementia care for diverse communities. This model will guide the development of tailored services that meet the specific needs of different groups. We hope it will serve as a valuable template for other dementia organisations striving to enhance their services and support for underrepresented communities.”

Dara de Burca, Executive Director of Dementia Support and Partnerships at Alzheimer’s Society, said: “Dementia is the biggest health and social care issue of our time, so it is vital that we get the right support services in place to meet the needs of people from diverse communities across the UK.We can only do this by listening and working with people from Black African, Black Caribbean and Black British communities affected by dementia. I’d encourage people to get in touch and help us develop this inclusive model.”

Whether you have accessed Alzheimer’s Society’s services or have not yet engaged with dementia support services, you can contact Dr Moïse Roche at m.roche@ucl.ac.uk to find out how you can help improve dementia services for Black families.

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