Support for patients and families with Bestrophinopathies
SupportÌýand adviceÌý
·¡²â±ð-³Û±Ê´¡³ÒÌýÌýAn advisory group for children with eye conditions which meets four times a year in London. Ìý | |
Macular SocietyÌýOfferÌýinformation,Ìýsupport, counsellingÌýand advice for patients with macular disease.ÌýSupport research into macular disease.Ìý ÌýÌý | |
Macular Society WAYPÌýNetworking and information forÌýworking age and young peopleÌýwith macular disease, ÌýÌý Contact:Ìýcolin.daniels@macular society.orgÌý Advice and Information ServiceÌý0300 3030 111Ìý | |
Retina UKÌýProvide support for those affected by inherited sight loss.Ìý Ìý | |
RNIBÌýSupport for people with vision loss.Ìý Ìý | |
Friends of MoorfieldsÌýSupports patient and staff at Moorfields Eye Hospital.Ìý Ìý | |
Rare DiseaseÌýThe national campaign for patients with rare disease, raising the profile of rare disease across the UK.Ìý Ìý | |
Rare Disease DayÌýA yearly event toÌýraise awarenessÌýamongst the general public and decision-makers aboutÌýrare diseases and their impact on patients' lives.Ìý Ìý |
Social Media GroupsÌý
Best disease (vitelliform macular dystrophy) BVMD - Facebook GroupÌýA patient ledÌýFacebook support group to shareÌýexperiences and informationÌýÌý Ìý | |
Macular Society - Working Age & Young People Group - Facebook GroupThe Macular society runs a working age and young peopleÌýgroup on FacebookÌý Ìý |
Charities funding research intoÌýinherited macular diseasesÌý
Macular SocietyÌýFundsÌýresearch into macular disease, includingÌýbestrophinopathiesÌý | |
Fight forÌýSightÌýFunds research to prevent sight loss and treat eye disease.Ìý Ìý | |
Moorfields Eye CharityÌýFunds research projects at 911±¬ÁÏÍø Institute of Ophthalmology and Moorfields Eye Hospital.Ìý Ìý | |
Retina UKÌýFund research into inherited vision loss.Ìý Ìý |